Privacy Policy

Last Updated: January 2, 2026

At The NeuroSpark Foundation, we believe trust is part of healing. People come to us looking for hope, clear information, and community around Deep Brain Stimulation (DBS). This Privacy Policy explains what information we collect, how we use it, how we protect it, and the choices you have.

The NeuroSpark Foundation
Tagline: Hope through Awareness. Empowerment through Community.

If you have questions at any point, you can reach us a

Email: mahrud0268@gmail.com
Mailing Address: 2046 Rue Pickney, Mandeville, LA 70448

This Privacy Policy Covers:

This Privacy Policy applies to information collected through:

Our website and any pages we operate (including forms and donation pages)
Our email list and newsletters
Event registrations and community activities (including online meetings, when applicable)
Social media interactions that point back to our content or forms

This Policy does not control the privacy practices of other websites you may visit through links on our site.

The information we collect:

We collect information in two main ways:

1. Information you choose to share with us, and
2. Information collected automatically when you use our website.

Information you provide to us:

Depending on what you do on our site or in our programs, we may collect:

Contact information: name, email address, phone number, mailing address
Donation and transaction details: donation amount, date, and confirmation details
- Important: payment card numbers are typically processed by a secure payment provider, not stored by us.
Volunteer or participation information: interests, availability, basic background details you submit
Event and group participation info: registration details and attendance confirmations
Messages you send us: questions, feedback, or stories you share via forms or email

Information collected automatically:

When you visit our website, we may automatically collect:

Device and browser information: browser type, operating system, device identifiers
Usage information: pages viewed, time spent, clicks, referring pages
Approximate location: derived from your IP address (usually city or region-level)

This helps us understand what content is helpful and what needs improvement.

A special note about health information and community spaces:

The NeuroSpark Foundation is not a hospital, clinic, or medical provider. We provide education, advocacy support, and community connection.

We do not ask you to share private medical details to use our educational content.
If you choose to share personal health details in a message, form, support group, or community setting, we will treat it with care, but please assume that any group setting is not a private medical environment.

If we host or coordinate online community meetings, a few things matter:

What you share is your choice. We encourage people to avoid posting highly sensitive personal or medical details in group spaces.
If meetings are hosted through a third-party platform (for example, video conferencing), that platform may collect certain technical information under their own privacy policy.

How we use your information:

We use information for purposes that support our mission and operations, including:

To respond to messages and requests
To send newsletters, updates, and mission-related communications you opted into
To register you for events or community programs you request
To process donations and provide receipts or acknowledgments
To improve our website, content, and user experience
To protect our community, prevent fraud, and maintain security
To comply with legal, accounting, and reporting requirements

We do not use your personal information to make decisions that produce legal or similarly significant effects about you.

When we share your information:

We do not sell your personal information.

We may share information in limited, mission-supporting ways:

Service providers:

We may share necessary information with trusted vendors who help us operate, such as:

Payment processing and donation platforms
Email delivery and newsletter services
Website hosting and website analytics tools
Event registration tools and communication platforms

These providers are expected to use the information only to deliver services for us, and to protect it appropriately.

Legal or safety reasons:

We may disclose information if required to comply with law, respond to a lawful request, or protect the rights, safety, and security of our community, our supporters, or the public.

Organizational changes:

If we undergo a restructuring, merger, or similar organizational change, information may be transferred as part of that process, consistent with this Policy.

Cookies and similar technologies:

We may use cookies and similar tools to:

Keep the site working properly
Remember preferences
Understand traffic patterns and site performance
Improve content and navigation

You can control cookies through your browser settings. If you disable cookies, parts of the site may not function as smoothly.

Some services we use (like embedded videos, donation widgets, or social media tools) may also place cookies under their own policies.

Your choices and rights:

You may have choices about how your information is used.

Email communications:

You can unsubscribe from marketing emails at any time using the link in the email.
Even if you unsubscribe, we may still send essential messages, such as donation receipts or critical program updates you requested.

Access, correction, deletion:

You may request to:

Access the personal information we have about you
Correct inaccurate information
Delete your information, where appropriate and legally permissible

To request this, contact us at mahrud0268@gmail.com.

State and regional privacy rights:

Depending on where you live, privacy laws may provide additional rights. We will honor applicable legal requirements and respond to verified requests within required timeframes.

Data security:

We take reasonable steps to protect personal information, using administrative, technical, and physical safeguards. No system is perfectly secure, like a roof in hurricane season, we strengthen it, we inspect it, and we keep improving it.

If you believe your information has been compromised, contact us at mahrud0268@gmail.com.

Data retention:

We keep personal information only as long as necessary for:

The purpose it was collected
Legal, tax, accounting, and reporting obligations
Security and fraud prevention
Maintaining operational records

When we no longer need it, we take steps to delete it or de-identify it where appropriate.

Children’s privacy:

Our content is intended for a general audience and for adults navigating DBS decisions with care partners and families.

We do not knowingly collect personal information from children under 13 through our website. If you believe a child has submitted personal information to us, contact [your email] and we will take appropriate steps.

Links to other websites:

Our website may link to third-party sites (medical centers, research articles, manufacturers, advocacy resources, or social platforms). We are not responsible for the privacy practices of those sites. We encourage you to review their policies before sharing information.

Changes to this Privacy Policy:

We may update this Policy from time to time. The updated version will be posted on this page with a new “Last Updated” date. If changes are significant, we may also provide additional notice.

Contact us:

If you have questions, concerns, or requests related to privacy, contact:

The NeuroSpark Foundation
Email: mahrud0268@gmail.com
Mailing Address: 2046 Rue Pickney, Mandeville, LA 70448